We have great news!
Bethany’s biopsy results showed mild rejection which we can treat with a change of her medication…Yeah! This was the best possible cause of her elevated liver numbers. Her doctor truly expected to see that Bethany’s PSC had returned.
Remember, we had three possibilities as the cause of Bethany’s elevated liver numbers:
- Rejection – which could have caused her to be hospitalized.
- Blockage – which would have required a stint to be inserted along with a drainage tube for 3 months.
- Recurrence of the PSC – which would have eventually required another transplant.
Rejection was the best of the 3, and praise God, that is what we’re dealing with. But because the rejection is so mild, we are able to treat it with home meds! How awesome is that!
I cannot even begin to tell you how excited we all are. This is huge! We had prepared ourselves for the worst and prayed for the best, but we’ve done that before without such good results. We are thrilled. This is one of the first times this past year that Bethany did not fall into the 10% range. You know what I’m talking about…only 10% of the people with xyz have this…side effect…develop cancer…reject their new organ in the first week…develop a recurrence of their disease…
It’s awesome that Bethany gets to be part of the 90% for a change! Further, her doctor said qualifying it with, “at this time,” that she shows no signs of recurrence of her PSC!!!
So, needless to say, we give God great praise and thanksgiving for all the answered prayers! Thank you for your continued prayers. Please keep them up. We are all still transitioning from sick Bethany to knew happy and healthy Bethany. It’s a great transition to experience.
We returned home last night around 6 p.m. and had a wonderful evening with our supper club from our small group at church. This morning, we have the wonderful privilege with our small group to go and serve breakfast to families at the Ronald McDonald House here in Birmingham!
It is a beautiful day outside this morning. Enjoy. Praise God.
Bethany came through her test well. We will not have test results for several days. The radiologist was unable to complete the cholangiogram (dye test). He was unable to get the needle into one of her bile ducts. This is not unusual. We’ve performed this test three times now, and only once of the three times have we been able to actually get the needle into the bile duct.
What does this mean? It means that we will not get all the conclusive evidence which we were hoping for regarding Bethany’s elevated liver enzymes. This seems to be the story of Bethany’s life. We often get conclusive/non-conclusive information.
The liver biopsy pathology report should be back in a few days. Her doctor will call me later today and I’m sure we will discuss where we go from here.
In the meantime, please continue to pray for clarity in understanding, diagnoses, and treatment. Please also pray for Bethany as she returns to school on Monday. She has missed 3 days of school.
For now, one huge praise. We get to go home! Yeah! Since the test are currently inconclusive, we have no further need to be here. We had been told to expect to stay for the weekend.
Thank you for your prayers and concerns. As we know more, I will update Bethany’s caringbridge page.
In His grace,
Bethany and I (Taylor) are have been in Atlanta since Wednesday having test run because Bethany’s liver levels have remained elevated since July. Bethany had a MRI on Wednesday afternoon, and we are currently waiting for her to go back for a liver biopsy and cholangiogram (dye injected into her bile ducts). Her doctor expects to find one of three thing: an obstruction, rejection, or recurrence of her primary sclerosing cholangitis (the disease which caused Bethany to need a transplant in the first place).
Bethany is feeling great. The elevated liver levels have not caused her to have symptomatic issues. We are definitely praying that her PSC has not returned.
Please pray for:
- Clear understanding of why Bethany’s liver enzymes have been elevated.
- Clear direction on how to help Bethany.
- Complete and total healing and good continued health.
- Praises for God’s grace in allowing Bethany to be back in regular school.
- Praises for God’s grace with Bethany and Jonathan’s 1st 9 weeks of school (all A’s & B’s for both).
- Praises, Bethany continues to be cancer free!
In His grace,